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Scared To Death To Sleep - Chatting About REM Sleep Disorder

by Judy Epson
(Long Beach, CA)

My name is Judy. I am 64 years old and have just been diagnosed with rem sleep disorder. This disorder has scared me to death. I would love to chat with other people who have this disorder to see if you have found any alternative treatments that have helped.


My doctor has also informed me that i will probably be getting parkinsons in the near future which I am having a very hard time with. Would like to here how others are doing with this? Would also like to know if anyone has gotten parkinsons after rem sleep disorder diagnosis.

Thank you so much. Judy

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May 13, 2013
 Volunteers Needed for RBD Sleep Research Study NEW
by: Anonymous

We are conducting a research study to understand the relationship between REM sleep behavior disorder (RBD) and neurological conditions using a variety of simple tests.
We are looking for people with RBD to participate in the study.

Participation will involve:

A brief neurological evaluation
Answering questionnaires
A blood sample
Simple, non-invasive tests like an EKG, smell test, vision test
Some participants may be asked to have additional tests, such as imaging of their brain or a study of their sleep

For more information:
Please call or email the Parkinson’s Institute
Clinical Research Department at
(800) 786-2958 ext. 434
sleepstudy@thepi.org
Aug 01, 2014
 fear of sleep NEW
by: Anonymous

I woke up one morning unable to move ,i was afraid that i was going to die. in my mind i was trying to tell my husband to shake me to wake me up. this happened a few times and i was afraid to go to sleep .This happened during a hectic period in my life It has not happened since but i am always afraid that it may happen again

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Welcome! This site is continuously being created by students of Dr. William C. Dement's Sleep And Dreams course at Stanford University.

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